We reason we are cycling 636 miles is to raise money for Cystic Fibrosis (CF). This is a genetic condition affecting more than 10,400 people in the UK. You are born with CF and cannot catch it later in life, but one in 25 of us carries the faulty gene that causes it, usually without knowing. You may be a carrier yourself…! People with cystic fibrosis experience a build-up of thick sticky mucus in the lungs, digestive system and other organs, causing a wide range of challenging symptoms affecting the entire body.
The build-up of mucus in the lungs causes chronic infections, meaning that people with cystic fibrosis struggle with reduced lung function and have to spend hours doing physiotherapy and taking nebulised treatments each day.
The Digestive System
Cystic fibrosis can cause the pancreas to become blocked with mucus, and when this happens enzymes required for digesting food cannot reach the stomach. People with CF often need to take more than 50 tablets a day to help digest food and keep respiratory symptoms in check
How does cystic fibrosis affect daily life?
Cystic fibrosis affects everyone differently, but for many it involves a rigorous daily treatment regime including physiotherapy, oral, nebulised and occasionally intravenous antibiotics, and taking enzyme tablets with food. Some people with CF will have a feeding tube overnight
What the CF Trust are doing about it
Each year they invest millions into cutting-edge research to tackle all of the big challenges faced by people with cystic fibrosis. they provide information and support, including grants to help with the costs associated with the condition, and the trust campaigns hard to ensure the voice of the CF community is heard loud and clear by decision makers.